Disappointment

Most people reading this blog are already my Facebook friends, so you know what I'm about to say.  I didn't think I'd be writing tonight, because I thought we would be out with my parents and then waiting on John and Cole to arrive later.  Unfortunately, nobody is here! Cole's babysitter texted this morning that Cole had a fever.  John took him to the doctor this afternoon (not this morning as I wanted him to) and Cole has the flu.  So obviously they cannot come up here and infect us with the flu, so they'll have to stay in Cairo.  Fingers crossed that they will be able to come next weekend.  It has already been 1.5 weeks since we saw them.  Cody is missing his Daddy and asked him on the phone tonight if he could come.  It was pitiful.  And poor baby Cole.  I just want to be there to take care of him.  I know John is capable... but all you moms out there know how I feel.  So why aren't my parents here?  Well, my dad had some sort of of "episode" on the way up here today and had to be taken by EMS to Phoebe.  He was having these "episodes" before and I'm not sure they ever really figured out what they were.  Mom says that they'll decide in the morning if they're able to come up or not.  Knowing my dad, he'll still try to come even if he shouldn't.  I hope Mom is able to convince him to stay home if he needs to.  We don't need any ambulance rides or more complications! So... to say the least I am very disappointed.  I'm sad about not seeing Cole.  I am nervous about entertaining Cody all weekend again. I am angry about having to watch Fizzy Fun Toys over and over again.  I am exhausted from the week.  But... we will make it.  

Everybody at "food school" is in awe of the progress Cody has made so far.  One of the therapist told me that he is progressing as quickly as he could.  Today he made it to a full level spoon, which is where they will keep him for awhile.  Monday they will begin introducing more of the foods we chose for him.  I think peaches is first on the list.  Yuck... but I'm weird.  Peaches was not my first choice from the fruit list, but it was one of the only ones we could choose, because they add wheat to some of the others when they puree it.The smell of peaches makes me want to vomit.  I hope Cody is not like me! Cody also loosened up a bit today and talked a lot more in his sessions.  I think he likes having therapy with Sasha better than Damarea.  I don't know why, but she does have more experience.  During one of his sessions, I was taken to the kitchen to be trained on how to prepare two of Cody's new foods.  I learned how to make gluten free chicken nugget puree and strawberry puree.  Both were equally disturbing to me, since I hate fruit.  But as long as I don't have to eat either of them myself, I think I'll be ok.  Next week I'll be given a manual with instructions on making all of the foods Cody is eating.  In the next two weeks I will be trained on how to feed Cody and I'll begin feeding him at home.  I think one or two days a therapist comes to your house to help you with the first home feedings.  I guess they'll still do that even though our "house" isn't our REAL house.  

Today I connected with another mom who is at Marcus with her second child to go through the program.  I cannot even imagine.  Her children had very different issues and reasons for going through the feeding program, though.  Her husband is super involved and I've actually seen him there more than her.  She was in the kitchen being trained on preparing purees with me today.  Her husband has already been trained and has been making the food at home.  I noticed her son was wearing a Florida State shirt and remembered her husband had one on earlier in the week.  Turns out she went to FAMU, but her husband is a huge FSU fan.  I told her I lived very close to Tallahassee and to my surprise, one of her closest college friends is from Cairo! She's the first person I've met that has even heard of Cairo.  

I think that's all for today. Keep us in your prayers, folks.  We surely need them right now.