Thursday, February 14, 2019

Happy Valentine's Day

I'm getting a late start to writing today.  I'm so tired, but I figured I better post now since I probably won't over the weekend. 

Today Cody's bite size went up two times! He's now on a 1/2 size bite! 1/2 of what, you say? I have no idea. But it's significantly more than the rice size bites he began with.  They are randomly rotating the 8 foods serving 4 at any given meal.  The nutritionist came by today to check on how Cody is eating outside of therapy.  He is currently having breakfast, morning snack, lunch, afternoon snack, and dinner outside of therapy sessions.  If he continues to go up in bite size, they will cut out his morning snack and he will just have his bites in snack session.  He was also seen by the PA today. It's nice to have medical staff available whenever we need them! 

 Today was the first day of Week 2 for us.  One week down! In a lot of ways, it went by really quickly. But at some moments, especially over the weekend, it seemed like the time was passing so slowly.  

Cody and I are both looking forward to all of our visitors this weekend.  Cody has big plans to hunt for a special Marshall toy (Paw Patrol) with Boss and CC.  They are also planning a trip to Build a Bear! I'm looking forward to spending time with Cole, since this is the longest I've been away from him.  

Cody was really excited this morning when I woke him up and told him it was Valentine's Day.  He immediately told me Happy Valentine's Day! He got a new stuffed puppy, who he named Brownie.  I showed him the valentine cards I put together for him to take to all his "friends" at Marcus today.  I put names on some and left some blank for folks we ran into.  The first person we gave a valentine to was the lady who checks us in each morning at the desk.  She was so surprised! After that Cody was so excited to give each person their valentine.  His cuteness was on full display today.  One of the other kids has spanish-speaking grandparents with him each day.  The little boy picked up Cody's parachute toy instead of his own.  The grandmother asked Cody in broken English if the blue parachute was ok with him.  That prompted me to get Cody to perform his "trick" for the grandparents saying blue, red, green, one, two, and three in Spanish! They were either super impressed or just thought he was super cute.. maybe both.. because they clapped and smiled a lot for Cody's "performance." This morning I pulled the old "the playground's closed" trick when it was still 45 degrees when he wanted to go out.  Of course, immediately after his last session he asked, "Is the playground open now??" We played on the playground for awhile after "school," then came home to find a card from a special friend and a Valentine's package from CC! Cody has had a fantastic Valentine's Day.  

I want to say thank you to everyone who is following along with our story.  And thanks for being angry with Facebook for taking my links down! It seems that the problem has been resolved and I'll probably never know why it was taken down to begin with! I'm just glad to have any easy way to keep everybody caught up on Cody's progress.  I also hope that there are a few people reading that have a child like Cody and are wondering what treatment might look like.  I was so confused before we came here and would have appreciated a blog like this giving details about the process.  

Happy Valentine's Day! 

5 comments:

  1. Happy Valentine’s Day Whitney and family πŸ’•

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  2. πŸ˜ŠπŸ˜ƒπŸ™ŒπŸΌπŸ™ŒπŸΌπŸ™ŒπŸΌ❤️❤️❤️πŸ’—πŸ’•
    And❤️πŸ™πŸΌ continue!
    And πŸ’ just for you, awesome mamma!

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  3. Love hearing about Cody's progress! You both are in my prayers!

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  4. I thought of you and Cody today after reading the little article CHOA posted about Flip visiting Marcus. So awesome! Sarah B.

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